A resolution designating November 28, 2013, as "National Holoprosencephaly Awareness Day" to increase awareness and education of the disorder.
Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3767)
Congressional Research Service
Official summary
Version 00 · Introduced in Senate · May 22, 2013
Expresses support for the designation of November 28, 2013, as National Holoprosencephaly Awareness Day.
Urges federal agencies to: (1) continue supporting research to better understand the causes of holoprosencephaly (HPE); (2) provide better counseling to families with the genetic forms of HPE; and (3) develop new ways to treat, and potentially prevent, HPE.
Calls on the people of the United States, interested groups, and affected persons to promote awareness of HPE and to take an active role in the fight to end its devastating effects.
No related bills are listed in this snapshot. This does not establish whether the proposal has appeared in earlier Congresses.
Source last updated: Apr 21, 2025. Consult Congress.gov for the current record.
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