Sickle Cell Disease Comprehensive Care Act

Read twice and referred to the Committee on Finance.

Congressional Research Service

Official summary

Version 00 · Introduced in Senate · Mar 28, 2023

Sickle Cell Disease Comprehensive Care Act

This bill establishes and provides funds for a demonstration project for state Medicaid programs to improve outpatient care for individuals with sickle cell disease, with a focus on young adults and pregnant women.

The Centers for Medicare & Medicaid Services must award planning grants to at least 10 states and must select between 5 and 10 states to participate in the project. Participating states must provide specified services and support for individuals with sickle cell disease, including multidisciplinary care teams, appropriate treatments, mental health services, and specialist services.

The bill provides a 100% Federal Medical Assistance Percentage (i.e., federal matching rate) for services provided through the project.

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People & committees

Who introduced it

Sen. Booker, Cory A. [D-NJ] · D–NJ

Committees

Finance Committee

3 cosponsorship records, including any withdrawals

Legislative record

Actions

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Mar 28, 2023
Read twice and referred to the Committee on Finance.
Mar 28, 2023
Introduced in Senate

Primary sources

Bill text & related measures

Text links open the official source. We currently store references to these documents.

Introduced in Senate · Mar 28, 2023 Formatted Text PDF Formatted XML

Related bills identified by Congress.gov

Source last updated: Dec 5, 2025. Consult Congress.gov for the current record.

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Analyze S.996 as objectively as possible. Explain its main provisions, who would be affected, possible benefits and harms, implementation, exceptions, and uncertainties. Present the strongest arguments for and against it, and identify evidence needed to assess its public impact.

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Discuss S.996, 118th Congress: Sickle Cell Disease Comprehensive Care Act

Official record: https://www.congress.gov/bill/118th-congress/senate-bill/996

Text version to examine: Introduced in Senate · 2023-03-28.

Official full text: https://www.congress.gov/118/bills/s996/BILLS-118s996is.htm

Imported record last updated by the source: 2025-12-05T08:57:37Z. Verify current status and distinguish any later version from the version above.

Read the official text before answering. If you cannot access it, say so and ask me to provide it; do not assume a link means you have read the document. Distinguish proposals from enacted law, cite sources, and separate facts, interpretation, and uncertain predictions. Include counterarguments even when using a particular perspective.

Analyze S.996 as objectively as possible. Explain its main provisions, who would be affected, possible benefits and harms, implementation, exceptions, and uncertainties. Present the strongest arguments for and against it, and identify evidence needed to assess its public impact.

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Progressive lens

Examine S.996 through a progressive lens, focusing on fairness, access, economic inequality, and effects on vulnerable communities. Explain potential benefits, costs, and unintended consequences. Consider the strongest counterarguments and distinguish stated goals from demonstrated outcomes.

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Discuss S.996, 118th Congress: Sickle Cell Disease Comprehensive Care Act

Official record: https://www.congress.gov/bill/118th-congress/senate-bill/996

Text version to examine: Introduced in Senate · 2023-03-28.

Official full text: https://www.congress.gov/118/bills/s996/BILLS-118s996is.htm

Imported record last updated by the source: 2025-12-05T08:57:37Z. Verify current status and distinguish any later version from the version above.

Read the official text before answering. If you cannot access it, say so and ask me to provide it; do not assume a link means you have read the document. Distinguish proposals from enacted law, cite sources, and separate facts, interpretation, and uncertain predictions. Include counterarguments even when using a particular perspective.

Examine S.996 through a progressive lens, focusing on fairness, access, economic inequality, and effects on vulnerable communities. Explain potential benefits, costs, and unintended consequences. Consider the strongest counterarguments and distinguish stated goals from demonstrated outcomes.

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Examine S.996 through a conservative lens, focusing on fiscal responsibility, institutional stability, federalism, and the scope of government. Explain potential benefits, costs, and unintended consequences. Consider the strongest counterarguments and any provisions that challenge this perspective.

View full prompt & sources

Discuss S.996, 118th Congress: Sickle Cell Disease Comprehensive Care Act

Official record: https://www.congress.gov/bill/118th-congress/senate-bill/996

Text version to examine: Introduced in Senate · 2023-03-28.

Official full text: https://www.congress.gov/118/bills/s996/BILLS-118s996is.htm

Imported record last updated by the source: 2025-12-05T08:57:37Z. Verify current status and distinguish any later version from the version above.

Read the official text before answering. If you cannot access it, say so and ask me to provide it; do not assume a link means you have read the document. Distinguish proposals from enacted law, cite sources, and separate facts, interpretation, and uncertain predictions. Include counterarguments even when using a particular perspective.

Examine S.996 through a conservative lens, focusing on fiscal responsibility, institutional stability, federalism, and the scope of government. Explain potential benefits, costs, and unintended consequences. Consider the strongest counterarguments and any provisions that challenge this perspective.

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Examine S.996 through a civil-liberties and limited-government lens. Consider individual rights, privacy, voluntary choice, accountability, and government power. Explain tradeoffs, possible safeguards, and the strongest counterarguments without assuming the proposal is beneficial or harmful.

View full prompt & sources

Discuss S.996, 118th Congress: Sickle Cell Disease Comprehensive Care Act

Official record: https://www.congress.gov/bill/118th-congress/senate-bill/996

Text version to examine: Introduced in Senate · 2023-03-28.

Official full text: https://www.congress.gov/118/bills/s996/BILLS-118s996is.htm

Imported record last updated by the source: 2025-12-05T08:57:37Z. Verify current status and distinguish any later version from the version above.

Read the official text before answering. If you cannot access it, say so and ask me to provide it; do not assume a link means you have read the document. Distinguish proposals from enacted law, cite sources, and separate facts, interpretation, and uncertain predictions. Include counterarguments even when using a particular perspective.

Examine S.996 through a civil-liberties and limited-government lens. Consider individual rights, privacy, voluntary choice, accountability, and government power. Explain tradeoffs, possible safeguards, and the strongest counterarguments without assuming the proposal is beneficial or harmful.