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Congressional Research Service
Version 00 · Introduced in Senate · Dec 14, 2021
Sickle Cell Disease Comprehensive Care Act
This bill establishes and provides funds for a demonstration project for state Medicaid programs to improve outpatient care for individuals with sickle cell disease, with a focus on young adults and pregnant women.
The Centers for Medicare & Medicaid Services must award planning grants to at least 10 states and must select between 5 and 10 states to participate in the project. Participating states must provide specified services and support for individuals with sickle cell disease, including multidisciplinary care teams, appropriate treatments, mental health services, and specialist services.
The bill provides a 100% Federal Medical Assistance Percentage (i.e., federal matching rate) for services provided through the project.
People & committees
Sen. Booker, Cory A. [D-NJ] · D–NJ
Legislative record
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Read twice and referred to the Committee on Finance.
Introduced in Senate
Primary sources
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Source last updated: Dec 5, 2025. Consult Congress.gov for the current record.
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