PlainBillCongress, translated.Legislation. Context. Public interest.Became Public Law No: 113-166.
Congressional Research Service
Version 82 · Passed Senate without amendment · Sep 18, 2014
(This measure has not been amended since it was reported to the House on July 24, 2014. The summary of that version is repeated here.)
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH).
Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers.
Showing the opening paragraphs of the official summary.
Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living.
Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy.
(Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner.
(Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.
People & committees
Rep. Burgess, Michael C. [R-TX-26] · R–TX
Legislative record
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Became Public Law No: 113-166.
Became Public Law No: 113-166.
Signed by President.
Signed by President.
Presented to President.
Presented to President.
Message on Senate action sent to the House.
Passed Senate without amendment by Unanimous Consent. (consideration: CR S5862)
Passed/agreed to in Senate: Passed Senate without amendment by Unanimous Consent.(consideration: CR S5862)
Read twice. Placed on Senate Legislative Calendar under General Orders. Calendar No. 529.
Received in the Senate.
The Speaker announced the title of H.R. 594 was amended in the form at the desk. Agreed to without objection.
The title of the measure was amended. Agreed to without objection.
Motion to reconsider laid on the table Agreed to without objection.
On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H6933)
Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H6933)
DEBATE - The House proceeded with forty minutes of debate on H.R. 594.
Considered under suspension of the rules. (consideration: CR H6933-6935)
Mr. Burgess moved to suspend the rules and pass the bill, as amended.
Placed on the Union Calendar, Calendar No. 416.
Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-556.
Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-556.
Ordered to be Reported (Amended) by Voice Vote.
Committee Consideration and Mark-up Session Held.
Committee Consideration and Mark-up Session Held.
Forwarded by Subcommittee to Full Committee (Amended) by Unanimous Consent .
Subcommittee Consideration and Mark-up Session Held.
Referred to the Subcommittee on Health.
Referred to the House Committee on Energy and Commerce.
Introduced in House
Introduced in House
Primary sources
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Source last updated: Dec 5, 2025. Consult Congress.gov for the current record.
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