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H.R.5115 / 115th Congress

RARE Act of 2018

Referred to the Subcommittee on Health.

Official summary

Version 00 · Introduced in House · Feb 27, 2018

Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018

This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.

The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.

Read the summary on Congress.gov
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Who introduced it

Rep. Carson, André [D-IN-7] · D–IN

Committees

  • Energy and Commerce Committee
19 cosponsorship records, including any withdrawals

Actions

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  1. Referred to the Subcommittee on Health.

  2. Referred to the House Committee on Energy and Commerce.

  3. Introduced in House

  4. Introduced in House

Bill text & related measures

Text links open the official source. We currently store references to these documents.

Related bills identified by Congress.gov

No related bills are listed in this snapshot. This does not establish whether the proposal has appeared in earlier Congresses.

Source last updated: Aug 11, 2025. Consult Congress.gov for the current record.

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Objective

Analyze H.R.5115 as objectively as possible. Explain its main provisions, who would be affected, possible benefits and harms, implementation, exceptions, and uncertainties. Present the strongest arguments for and against it, and identify evidence needed to assess its public impact.

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Fairness and public impact

Progressive lens

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Institutions and government scope

Conservative lens

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Individual rights and government power

Liberty lens

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