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H.R.4013 / 107th Congress

Rare Diseases Act of 2002

Became Public Law No: 107-280.

Official summary

Version 79 · Reported to House without amendment · Jun 26, 2002

Rare Diseases Act of 2002 - Amends the Pubic Health Service Act to: (1) establish an Office of Rare Diseases at the National Institutes of Health; and (2) provide for rare disease regional centers of excellence. Sets forth the duties of such Office and regional centers, including research and educational duties. Defines rare disease as any disease or condition affecting fewer than 200,000 persons in the United States. Authorizes appropriations for FY 2003 through 2006.

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Who introduced it

Rep. Shimkus, John [R-IL-20] · R–IL

Committees

  • Energy and Commerce Committee
54 cosponsorship records, including any withdrawals

Actions

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  1. Became Public Law No: 107-280.

  2. Became Public Law No: 107-280.

  3. Signed by President.

  4. Signed by President.

  5. Presented to President.

  6. Presented to President.

  7. Message on Senate action sent to the House.

  8. Passed Senate without amendment by Unanimous Consent. (consideration: CR S10769)

  9. Passed/agreed to in Senate: Passed Senate without amendment by Unanimous Consent.(consideration: CR S10769)

  10. Received in the Senate, read twice.

  11. Motion to reconsider laid on the table Agreed to without objection.

  12. On motion to suspend the rules and pass the bill Agreed to by voice vote. (text: CR H6812-6813)

  13. Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by voice vote.(text: CR H6812-6813)

  14. Considered as unfinished business. (consideration: CR H6883)

  15. At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Waxman objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.

  16. DEBATE - The House proceeded with forty minutes of debate on H.R. 4013.

  17. Considered under suspension of the rules. (consideration: CR H6812-6815)

  18. Mr. Shimkus moved to suspend the rules and pass the bill.

  19. Placed on the Union Calendar, Calendar No. 324.

  20. Reported by the Committee on Energy and Commerce. H. Rept. 107-543.

  21. Reported by the Committee on Energy and Commerce. H. Rept. 107-543.

  22. Ordered to be Reported by Voice Vote.

  23. Committee Consideration and Mark-up Session Held.

  24. Sponsor introductory remarks on measure. (CR H3656)

  25. Referred to the Subcommittee on Health.

  26. Referred to the House Committee on Energy and Commerce.

  27. Introduced in House

  28. Introduced in House

Bill text & related measures

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Related bills identified by Congress.gov

Source last updated: Apr 7, 2025. Consult Congress.gov for the current record.

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Neutral evidence review

Objective

Analyze H.R.4013 as objectively as possible. Explain its main provisions, who would be affected, possible benefits and harms, implementation, exceptions, and uncertainties. Present the strongest arguments for and against it, and identify evidence needed to assess its public impact.

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Fairness and public impact

Progressive lens

Examine H.R.4013 through a progressive lens, focusing on fairness, access, economic inequality, and effects on vulnerable communities. Explain potential benefits, costs, and unintended consequences. Consider the strongest counterarguments and distinguish stated goals from demonstrated outcomes.

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Institutions and government scope

Conservative lens

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Individual rights and government power

Liberty lens

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