the reasons for patients and providers to consider such screenings;
the conditions such screenings may detect;
the risks and benefits of, and alternatives to, the various methods of administering such screenings and prenatal diagnostic testing;
the possible results of such screenings and the accuracy of such results;
the need for diagnostic testing, and counseling by a genetics professional, for patients whose screenings yield positive, abnormal, or indeterminate results; and
the need for communication of results to patients and appropriate follow-up per guidelines established by medical professional societies.
Requires each program to provide materials that:
contain information that is peer-reviewed, balanced, accurate, and up-to-date;
enable the respective target audience to understand the available options with regard to such screenings, other prenatal screenings, and diagnostic tests;
promote the informed consent of, and enhance the decision-making processes of, the respective target audience before and after such screenings;
contain information that appropriately addresses the diversity of the patient population; and
contain contact information for relevant services and support organizations for patients.
Requires CDC to submit annual reports regarding:
the development and implementation of such programs;
the accessibility of each program to, and the adoption of each program by, its respective target audience; and
CDC's efforts to ensure that providers and patients receive the materials created pursuant to this Act.